Elyse- Craniofacial Apert Syndrome

The Cosico's young daughter Elyse was born with a rare #craniofacial condition called Apert Syndrome.  The syndrome is characterized by abnormal skull development, fused fingers and toes, and some facial deformities. Elyse faces multiple hospitalizations and surgeries, and will be the recipient of this year’s “Taste of Union” event to be held on Thursday, April 19.  The “Taste of Union” annually showcases local restaurants and food vendors to benefit an individual or family in need. https://goo.gl/Kv2V6H

Craniofacial Remolding Cranial Helmets

This may be useful information for parents with babies who have #craniofacial conditions and are in need of cranio remolding helmets. 💜  https://goo.gl/SRfxwB

The Psychological Impact of Children born with Craniofacial Abnormalities

I've been studying the psychology of our conditions and have written several research papers. This is taken from my paper "The Psychological Impact of Children born with Craniofacial Abnormalities."

Awhile back, I showed this paper to Dr. Lee, a reputable #craniofacial doctor at UCLA. She has a beautiful heart and she's always inspired me to share my knowledge with others.

My husband is studying for a Bachelor's in Nutrition, which we'll be educating others about as well. Our studies were graded by accredited educational institutions. If you have any requests, please let us know!

Mom’s Simple Creamy Coconut Rice Recipe

Are you looking for a stress-free and kid-friendly #recipe? Try Craig and Jenny D's delicious Creamy Coconut Rice perfect for Busy Moms! http://bit.ly/2EPNwIF

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My friend Christina Stramac was featured on the news following her successful book publication "It's Chychxn!" This book provides a raw, candidly detailed journey of a young woman’s heart wrenching struggle with Treacher Collins Syndrome and the 50% chance of potentially passing on the #craniofacial difference to her unborn children. It is not what society’s judgments will be—she has contended with that for a long time. 

Watch CTV Windsor News video http://bit.ly/2Fuvt7P and visit her website: http://bit.ly/2zyoG8I

Teenager With Craniofacial Tumour Proves Doctors Wrong

BRAVO Jacque Rodriguez, you're an inspiration to all of us! While looks can be deceiving, this remarkable young lady is changing the face of #craniofacial conditions and combating the stigma. VIDEO: https://youtu.be/wCAeWlRKHeI

Jacque is near a college graduate at the age 16. I met her in San Jose on 9/25/2016, during our charity event, which led to both of our awareness films. Life takes you to unexpected places and brings you many blessings.

Thank you, Barcroft TV for your tireless efforts in undertaking the many ongoing craniofacial stories for the 'Born Different' awareness series and for displaying our messages across so beautifully.

MEMORIES: http://bit.ly/2AD5w21

"Judge Me By My Heart Not My Looks."

Julia has Crouzon Syndrome, a #craniofacial disorder. What an vibrant girl with a beautiful heart! https://youtu.be/52NaSC9IHKE

Grandmother Wiang Boonmee - Neurofibromatosis Craniofacial Disorder

Grandmother Wiang Boonmee, 63 from Thailand has a rare #craniofacial disorder that caused her to go blind. This condition causes facial growths known as Neurofibromatosis. She is refusing surgery because she fears she might die on the operating table. 😟 http://dailym.ai/2sCrzqW

Organic Spaghetti Squash Pasta with Spiralized Zucchini

Nutrition is an important part of leading a healthy lifestyle. It is especially important for those who have chronic illnesses and physical #disabilities, including #craniofacial conditions. Try Craig and Jenny D's easy and hearty 6-ingredient vegan recipe ➡️ Organic Spaghetti Squash Pasta with Spiralized Zucchini! 💟 FULL RECIPE: https://goo.gl/jzK3XJ

Disability Activist Lili Rachel Smith - Apert's Syndrome

INSPIRING but SAD: How many can relate to the experiences of social isolation? Disability activist Lili Rachel Smith was born with Apert's syndrome, a #craniofacial condition. She had the friendship and admiration of some of the nation's top political leaders. Lili became socially isolated during her middle school years and then died of medical complications.

A few local teens began speaking about social isolation, leading to the first small group of Beyond Differences founded by Lili's parents. Watch her story via YouTube: https://youtu.be/vXkfpR5wO-k

News story via Vindy: https://goo.gl/7oZFeK and SF NEWS: https://goo.gl/Tme587         

Patrick Bruns - Apert Craniofacial Syndrome

Patrick Bruns was born with Apert Syndrome, a #craniofacial disorder that involves malformations of the hand and feet. He lives a full life, but there are a number of challenges that come with his condition involving significant breathing issues and choking. After careful consideration, Patrick and his family agreed to go forward with a risky but life-changing surgery. The goal is to move Patrick’s face forward about one millimeter a day so he isn’t expected to be fully healed for another few weeks until it reaches 25 millimeters. http://bit.ly/2HwJCC8

Latrea Wyche: Disabilities Empowerment Coach Born with Pfeiffer Syndrome

Latrea Wyche is a beautiful and educated woman who was born with Pfeiffer Syndrome, a #craniofacial disorder. We've been FB friends for well over a year. Her story is amazingly compelling and relatable. Some of us come from broken homes but persevered. Reading her life experiences and accomplishments pulled my heartstrings and made my eyes swell. I feel privileged to have met this courageous and massively inspiring woman. http://bit.ly/2G9Ohbv

Louis Legend, 2-year-old Model with Treacher Collins Syndrome

Louis Legend, is a 2-year-old with Treacher Collins Syndrome, a #craniofacial disorder. He has become a model for Lulas Dudes & Dolls to help raise awareness about his condition! http://bbc.in/2Hkco8P

Warren Armstrong born with Moebius Craniofacial Syndrome

Warren Armstrong is an adorable courageous young boy who was born with Moebius syndrome, a #craniofacial condition that affects the cranial nerves in the face. He was also born with malformed hands requiring surgery when he turns two years old. This disorder can also involve dental conditions, breathing issues, visual impairments, sleep problems, and weak upper bodies. http://dailym.ai/2EMiaSc

Smile with Simon Children's Book - Craniofacial

Today, we received a wonderful package filled with books to give away to children at the next #craniofacial summer retreat! https://goo.gl/zwXP5e

Smile with Simon is a children's picture book about cleft-lip and palate written and illustrated by Patricia Simon. These delightful picture books will bring so much joy to the kids receiving them!

Thank you so much, Patricia!

It’s Chyckxn!” The Unculinary Way I Made Life Palatable: Treacher Collins Syndrome

Cris Stimach is inspiring, beautiful and a career success. Not only has she published this insightful book about her journey living with Treacher Collins Syndrome, but she works in government. Having a #craniofacial disorder does not define who you are and what you're capable of accomplishing. We could all learn a thing or two from this remarkable woman! http://bit.ly/2soNe5H

Singing Vlogger with Cystic Hygroma, a Rare Craniofacial Disorder Causing a Facial Tumour

Barcroft did another brilliant hit of their increasingly popular series 'Born Different'! Courtney was born with Cystic Hygroma - a rare #craniofacial condition that causes growths in the chin and neck. She sends a message of defiance to bullies every time she sings then hits ‘upload.’ This woman is incredibly beautiful and courageously inspiring. Take a moment and think about how brave she is. This is the kind of bravery that we want for ourselves and our children. http://bit.ly/2EBUiAJ

Nutrition for Special Populations: GERD and Chronic Constipation

My husband got 150/150 points on this assignment for his class: Nutrition for Special Populations! Here's his report about GERD and Chronic Constipation for those living with disabilities and #craniofacial conditions! It includes facts, causes and detailed methods for relief! https://goo.gl/oasXwk 

PREVIEW: Many Americans suffer from nutritional and gastrointestinal deficiencies especially special populations. Illnesses commonly associated with special needs often include multiple diagnoses, including GERD and chronic constipation. GERD affects approximately 20 percent of the U.S. population. Patients are often given a diet plan that includes a set amount of foods containing high fiber. Chronic Constipation is caused by various dietary, lifestyle, and medical factors and it involves the struggle in passing stool.

Soulful, Inspiring and Accomplished Musician with Treacher Collins Syndrome

Ruthie Lorraine and I have been friends on FB for two years; she's a beautiful person. She has Treacher Collins Syndrome, a #craniofacial disorder. Ruth fought through her struggles finding comfort and healing through her music. Her songs will give you the chills and motivation to go out and accomplish anything that you put your heart, mind, and soul into. (video included). http://bit.ly/2EAsay6

FREE 7-Day Meal Plans - HIPAA Compliant

This is just one of our AMAZINGLY healthy and delicious recipes! Baked eggplant with tofu, rice with avocado and fennel. We cook our own nutritious meals for Assuaged, a FREE charitable app that guides you to organic plant-based products and recipes.

PM us for a FREE #vegan plant-based 7-day meal plan at https://goo.gl/K2ibbh

Charitable Giveaways: Craniofacial Cochlear Baha Hearing Aids

Does anyone need a new Cochlear Baha hearing aid device? We have TWO advanced processors to GIVE to #craniofacial families in need. The deadline to apply is coming up soon. Please apply and submit your application here: https://goo.gl/1NNu8u

Gastric Feeding Tubes: Pre-Blended Organic Food by Functional Formularies

We've spoken to many friends and parents who often face issues involving tracheotomies and G-tubes. If you or your child has a gastric feeding tube, Functional Formularies offers certified organic vegan and plant-based pre-blended food varieties for those with g-tubes. They're supported by countless testimonials, and they accept INSURANCE! goo.gl/Mrv4CJ

Organic Vegan Alfredo Purple Pad Thai Recipe

Treacher Collins Syndrome is a #craniofacial disorder that typically presents many digestive issues. I have stomach pain and indigestion almost daily. For this reason, I must select healthier foods to eat. This organic #vegan Alfredo Purple Pad Thai #recipe is delicious, nutritious and so easy to make! http://bit.ly/2D0d2tP

A Walking, Talking Miracle: Living with Pfeiffer Syndrome

Braden is indeed a miracle! He's endured 28 surgeries and medical procedures related to his condition known as Pfeiffer syndrome, a #craniofacial disorder. He doesn’t eat by mouth, but relies on a feeding tube in his stomach. http://bit.ly/2mk4vGV

“Just a normal girl,” Anna overcomes great challenges

Anna was born with a rare #craniofacial condition called Nager syndrome. She has underdeveloped cheekbones, eight fingers, a cleft palate and small jaw.

 

To date she's had three surgeries on her jaw and other medical procedures to correct sleep apnea, eating difficulties, hearing, speech and hand functions. http://bit.ly/2AngNTS

Overcoming Paralysis: Did You Do Your Therapy Homework?

At age forty-nine, Jeffrey A. Morse​ suffered a spinal cord stroke that left him #paralyzed. After being told that he would more than likely never walk again, Jeffrey made a vow that he would walk again. Six weeks later, he did just that.

His journey has led him to alternative therapies and a #healthy lifestyle. It has taken him from that hospital bed to France, and to Nepal, where he paraglided off the top of a mountain and fed a vulture in flight. http://bit.ly/2lJAvDW