Cynthia is a Graduate Student and Craniofacial Awareness Advocate born with Treacher Collins Syndrome. She currently works as a health and wellness activist with her husband through their FREE charity app Assuaged. The Murphys are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. They are going beyond charity and unifying people through love and compassion.
Tuesday, February 20, 2018
Patrick Bruns - Apert Craniofacial Syndrome
Patrick Bruns was born with Apert Syndrome, a #craniofacial disorder that involves malformations of the hand and feet. He lives a full life, but there are a number of challenges that come with his condition involving significant breathing issues and choking. After careful consideration, Patrick and his family agreed to go forward with a risky but life-changing surgery. The goal is to move Patrick’s face forward about one millimeter a day so he isn’t expected to be fully healed for another few weeks until it reaches 25 millimeters. http://bit.ly/2HwJCC8
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