Cynthia is a Graduate Student and Craniofacial Awareness Advocate born with Treacher Collins Syndrome. She currently works as a health and wellness activist with her husband through their FREE charity app Assuaged. The Murphys are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. They are going beyond charity and unifying people through love and compassion.
Wednesday, February 21, 2018
Disability Activist Lili Rachel Smith - Apert's Syndrome
INSPIRING but SAD: How many can relate to the experiences of social isolation? Disability activist Lili Rachel Smith was born with Apert's syndrome, a #craniofacial condition. She had the friendship and admiration of some of the nation's top political leaders. Lili became socially isolated during her middle school years and then died of medical complications.
A few local teens began speaking about social isolation, leading to the first small group of Beyond Differences founded by Lili's parents. Watch her story via YouTube: https://youtu.be/vXkfpR5wO-k
News story via Vindy: https://goo.gl/7oZFeK and SF NEWS: https://goo.gl/Tme587
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