Braden is indeed a miracle! He's endured 28 surgeries and medical procedures related to his condition known as Pfeiffer syndrome, a #craniofacial disorder. He doesn’t eat by mouth, but relies on a feeding tube in his stomach. http://bit.ly/2mk4vGV
Cynthia is a Graduate Student and Craniofacial Awareness Advocate born with Treacher Collins Syndrome. She currently works as a health and wellness activist with her husband through their FREE charity app Assuaged. The Murphys are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. They are going beyond charity and unifying people through love and compassion.
Thursday, January 11, 2018
A Walking, Talking Miracle: Living with Pfeiffer Syndrome
Labels:
craniofacial,
disability,
feeding tube
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