Cynthia is a Graduate Student and Craniofacial Awareness Advocate born with Treacher Collins Syndrome. She currently works as a health and wellness activist with her husband through their FREE charity app Assuaged. The Murphys are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. They are going beyond charity and unifying people through love and compassion.
Tuesday, November 28, 2017
Scott Guzzo Has Crane-Heise Syndrome, a Rare Craniofacial Condition
I've spent time with the Guzzo family at the Annual CCA Retreat! Scottie has Crane-Heise syndrome, a #craniofacial condition. The syndrome is so rare, as far as the family knows, Scott may be the only person in the world right now with it. Scottie lives every day to the fullest, and he loves everyone. His energy is remarkable and enjoyably infectious.
The Guzzo's are amazing people who continue to make a profound difference in the craniofacial community and beyond. I'm so thankful to have met this amazing family. 💗 http://bit.ly/2AEXBpf
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