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Tuesday, November 28, 2017

Scott Guzzo Has Crane-Heise Syndrome, a Rare Craniofacial Condition


I've spent time with the Guzzo family at the Annual CCA Retreat! Scottie has Crane-Heise syndrome, a #craniofacial condition. The syndrome is so rare, as far as the family knows, Scott may be the only person in the world right now with it. Scottie lives every day to the fullest, and he loves everyone. His energy is remarkable and enjoyably infectious.

The Guzzo's are amazing people who continue to make a profound difference in the craniofacial community and beyond. I'm so thankful to have met this amazing family. 💗 http://bit.ly/2AEXBpf



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