Cynthia is a Graduate Student and Craniofacial Awareness Advocate born with Treacher Collins Syndrome. She currently works as a health and wellness activist with her husband through their FREE charity app Assuaged. The Murphys are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. They are going beyond charity and unifying people through love and compassion.
Wednesday, November 22, 2017
Meet Nathaniel, a brave boy with Treacher Collins Syndrome
A remarkable story of hardships and triumphs! After nearly 60 surgeries, the Newmans met with surgeons at Seattle Children's Hospital and made the difficult decision to have their son Nathaniel undergo a radical surgery that had only been performed on one other child with Treacher Collins Syndrome. He was 12 years old, and the goal of the surgery was to be able to open up Nathaniel’s airway enough to finally remove his trach.
Over the years, the Newman family has worked with two non-profit organizations, myFace and Children's Craniofacial Association, both offer support to patients with facial differences and their families. as well as raise awareness about these conditions.
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