JoAnne Treacher Collins Syndrome

JoAnne discusses her journey as an illustrator and animator at LoveLove Films and Treacher Collins Syndrome. https://lovelovefilms.com/blog/animator-joanne-salmon-journey/ #craniofacial

Children with Craniofacial Conditions Face Most Difficult Social Pressures in Elementary School

We've been discussing this for quite some time now! Research conducted by Dr. Lee finds that children with craniofacial defects face most difficult social pressures in elementary school. Furthermore, studies have found age-related differences in psychosocial function of children with CFAs. Thank you Dr. Justine Lee for your dedicated and passionate efforts in treating and researching craniofacial abnormalities!

Research Alert: http://newsroom.ucla.edu/releases/children-with-craniofacial-defects-face-most-difficult-social-pressures-in-elementary-school

Research Findings: at: http://journals.lww.com/plasreconsurg/Abstract/2017/10000/Age_Related_Differences_in_Psychosocial_Function.25.aspx

Viral Craniofacial Makeup Vlogger

I've shared this before. ☺ Marimar once hid from strangers because of her large facial tumor, but now she's a popular makeup blogger and Zumba instructor. She was born with a cystic hygroma, a type of #craniofacial birth defect that often grows as the child does. This magnificent woman does not allow her condition to defeat her as she continuously perseveres while redefining beauty. ❤

Watch YouTube video or read more at: http://www.foxnews.com/health/2016/08/16/woman-with-facial-tumor-gains-fame-as-makeup-vlogger.html

Inspirational Vlogger Redefines Beauty - https://youtu.be/D6BJtZZGccE

Apert Syndrome discussed in detail by Professor David Dunaway, Plastic & Reconstructive Surgeon at LCU

Professor David Dunaway, Plastic & Reconstructive Surgeon at LCU discusses #Apert Syndrome, a common #craniofacial disorder. https://youtu.be/BAnuetkMkTYz

Nyle DiMarco Talks About Coming Out As A Member Of The Deaf

Nyle won ANTM and then started a movement! Check out The Nyle DiMarco Foundation where they empower lives together while advocating for equality for the #deaf and hard of #hearing. See YouTube video where Nyle talks about coming out as a member of the deaf @ https://youtu.be/nwHN3WdO1Vg #craniofacial      

The Airway, Breathing and Orthodontics

Another interesting read... I'm not convinced that having surgery younger is better - only because multiple doctors and specialists recently told me that I got my first major jaw reconstruction too young (19). This then resulted in my Treacher Collins condition worsening. I had braces at age 12 and then had them removed eight years later. Now I'm starting the process all over again. I've met several #craniofacial adults who started this process much later in life than I did, and they had excellent long-term results.

Parents, please just ensure you do your online research, talk to other parents who have experience by connecting with them in FB groups. Also, it never hurts getting a second or even a third medical opinion.

I will, however, say this article is very accurate as to the problems we regularly face. Dental hygiene and self-care pro-activeness are necessary. I will touch more on this subject soon. 💙

https://connectingheads.com/articles/the-airway-breathing-and-orthodontics/

Beautiful girl born with Nager Syndrome and multiple craniofacial conditions

Youtube vlogger, Alicia, is a beautiful girl who was born with #Nager Syndrome as well as multiple #craniofacial diagnoses. https://youtu.be/LfJSE4cBhMo