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Thursday, November 23, 2017

Apply for Craniofacial Cochlear Baha Giveaway

We've received several entries and have read some very troubling stories, involving children under the age of seven, living without the ability to hear and comprehend. Reading these harsh realities has been heartbreaking and absolutely mind-blowing. 
While we only have one device to giveaway, ALL of your stories matter to us. We will be sending copies of every email to Cochlear directly and to various lawmakers - including a California Congressman. Our voices and people of influence can enact the positive changes needed.  ðŸ’™
Please apply if you're in need of a Cochlear Baha hearing aid. http://bit.ly/2zcN5Bi

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Wednesday, November 22, 2017

Meet Nathaniel, a brave boy with Treacher Collins Syndrome


A remarkable story of hardships and triumphs! After nearly 60 surgeries, the Newmans met with surgeons at Seattle Children's Hospital and made the difficult decision to have their son Nathaniel undergo a radical surgery that had only been performed on one other child with Treacher Collins Syndrome. He was 12 years old, and the goal of the surgery was to be able to open up Nathaniel’s airway enough to finally remove his trach.

Over the years, the Newman family has worked with two non-profit organizations, myFace and Children's Craniofacial Association, both offer support to patients with facial differences and their families. as well as raise awareness about these conditions.

Watch Video and Read Full Story

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Macy Does not Allow Goldenhar Syndrome to Control Her Life


Macy Acord has suffered from Goldenhar Syndrome since birth but she and her mom want people to know that she’s just like every other teenage girl. She does not allow her craniofacial disorder to control her life. http://bit.ly/2jfDZwV

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Saturday, November 18, 2017

Healthy Plant-Based Vegan Multi-Vitamin

If you deal with chronic illness or have a #craniofacial disorder we recommend organic veganism. If you're concerned about nutrient deficiencies on a #plantbased diet, no worries. We've got you covered with one of our Assuaged product recommendations by Garden of Life! mykind Organics is a daily complete #vegan multivitamin formula for individuals of all ages, each with its own unique ingredients. | Assuaged

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Garden of Life MyKind Brand

Thursday, November 9, 2017

Kiri Schroeter has Undergone 40+ Craniofacial Surgeries


Kiri Schroeter prompted South Australians to come together and admire the work of leading #craniofacial surgeon David David.

Kiri's story is an amazing triumph over circumstances and possibly even tragedy. He was abandoned at a Cambodian orphanage as a nine-month-old and left in a shoebox without feet and hands, and with facial deformities, Kiri was adopted by a wonderful Barossa Valley family. Read full article HERE.

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Friday, November 3, 2017

Dorsey Ross and Apert Syndrome


Dorsey Ross was born with a disorder called Apert Syndrome, a #craniofacial condition that affects the hands and face. When he was born his forehead was pushed outward his eyes and nose were pushed back into his head. His fingers and toes were fused together meaning Dorsey had no movement of them. He has been through 68 operations over his lifetime, told he would not make it in this world by doctors.

Dorsey Ross Is The Definition of Overcomer 

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Thursday, November 2, 2017

Craniofacial Conditions and Chronic Illness


Wow, we've been receiving many applications for the Cochlear Baha hearing aid giveaway. Please apply if you have a #craniofacial condition and are in need! You can submit an entry following the link at the end of my new article. 💜
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If you have a chance, please do read it. I've included significant health information backed by personal experiences, interviews, medical studies and movie documentaries.