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Monday, October 9, 2017

Stephanie (8) Treacher Collins Syndrome - Be Yourself and Nothing Else

I connected with mother and friend Janet last year; she sent me several videos yesterday of her vivacious 8-year old daughter Stephanie. She was born with Treacher Collins Syndrome, including severely restricted airways. However, she doesn't allow it to get the best of her!

This marvelous young girl is hilarious, and I can't get enough of her energy! 😂 She is beyond inspiring, which is significant because many of the same age needs to see that it's okay to be yourself!

I'm so grateful to have met this amazing family!  #craniofacial #treachercollins


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