I connected with mother and friend Janet last year; she sent me several videos yesterday of her vivacious 8-year old daughter Stephanie. She was born with Treacher Collins Syndrome, including severely restricted airways. However, she doesn't allow it to get the best of her!
This marvelous young girl is hilarious, and I can't get enough of her energy! 😂 She is beyond inspiring, which is significant because many of the same age needs to see that it's okay to be yourself!
I'm so grateful to have met this amazing family! #craniofacial #treachercollins
Cynthia is a Graduate Student and Craniofacial Awareness Advocate born with Treacher Collins Syndrome. She currently works as a health and wellness activist with her husband through their FREE charity app Assuaged. The Murphys are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. They are going beyond charity and unifying people through love and compassion.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment