LinkedIn

Friday, December 29, 2017

Delicious Organic Vegan Eggnog Recipe for Digestive Health




I have to be health-conscious because of my current medical issues attributed to my craniofacial disorder. However, I still love my sweets. This #vegan eggnog recipe contains raw Cashews, Dates, and Banana. It is delicious, nutritious and super easy to make! ðŸ˜‹  http://bit.ly/2lhXKpf







attachment

Forest Born With Charge Syndrome Has Spent His Entire Life in Hospitals. Now His Parents Need Help Bringing Him Home


One-year-old Forest Kanode has spent the entire first year of his life in a hospital. He had surgery at 7 days old and then he had a second heart surgery at 2 months old.

Forest’s heart problems were just part of what he’s dealt with. He was also diagnosed with CHARGE syndrome, a #craniofacial disorder that can affect a child’s eyes; heart; sinuses, esophagus and trachea; development; genitals and ears. http://bit.ly/2BRhoyG



attachment

Thursday, December 28, 2017

Craniofacial Conditions: Apply to Win a Cochlear Baha Advanced Hearing Aid Processor



We've received many applications for the Cochlear Baha processor giveaway. Please apply if you or your child has a #craniofacial condition and are in need of an advanced hearing aid device. You can submit an entry following the link. 😊 http://bit.ly/2zcN5Bi





attachment

Vegan Eating Set to Be 2018’s ‘Mega-Trend’ as Plant-Based Sales Triple in One Year


Plant-based #veganism is the new #health food trend of 2018! This is so exciting! :100: http://bit.ly/2BMJGdN



attachment

Casting Call for Young Girls with Disabilities


Calling all #craniofacial parents! Check out this amazing modeling opportunity provided by Changing the Face of Beauty! http://bit.ly/2zFrKzH



attachment

Wednesday, December 27, 2017

Raising Awareness for Facial Differences One Smile at a Time



Rebecca was born with hemifacial microsomia, a #craniofacial condition. Often, people assume that a facial difference includes a cognitive delay or a learning disability. Griffin notes that this assumption is simply not true. “Overcoming barriers like that is a significant part of our work,” she said. http://bit.ly/2BZuD4J





attachment

Friday, December 22, 2017

Wednesday, December 20, 2017

Media News: The Love Story Behind Assuaged


The Assuaged​ owners Thane Murphy (Disabled USMC Veteran) and Cynthia Murphy (Treacher Collins Syndrome) have a unique 'rags-to-riches' love story that made its way across the media news!

Follow the link to watch the video by Barcroft Media! http://bit.ly/2Ba9zUC

Daily Mail Reports: Woman told she was too ugly to #love and spent her childhood being beaten and #bullied has finally accepted her severe facial deformity because to her husband she is ‘the most #beautiful woman in the world.’





attachment

Monday, December 18, 2017

Singapore Street Noodles Recipe—Nutritious Healthy Comfort Food



Singapore Street Noodles never fail me—and they won’t fail you either. If you’re feeling overwhelmed with drop-in guests, or if you are just seeking nutritious and delicious comfort food, give these a try. Easy #vegan recipes by Bonnie Hearn Hill, The Vegan Writer. http://bit.ly/2j9Kamz





attachment

Looking Passed the Face to the Person Within


Jennifer Wallace reflects on her journey and the documentary she was inspired to create. Her first surgery at 22 months old and continued through more than 16 additional surgeries to correct facial damage caused by a #craniofacial #hemangioma, a benign growth of blood vessels. Story published by Wells Fargo Stories. http://bit.ly/2CvLxDx



attachment

Wednesday, December 13, 2017

A Plant-Based Lifestyle with No Judgment, No Remorse



Here's another article publication! I also mention how I enhanced the quality of my life dealing with the chronic illnesses associated with having Treacher Collins Syndrome, #craniofacial disorder. http://bit.ly/2AhfN4A





attachment

Couple With Rare Disorder Meet, Get Engaged


A beautiful love story that begins in 2013. Erin, from Linwood, has Moebius syndrome, a rare #craniofacial disorder that causes facial paralysis. According to the United States National Library of Medicine, the condition affects 1 in 50,000 to 1 in 500,000 newborns. http://bit.ly/2z7gqzr



attachment

Tuesday, December 12, 2017

The Link Between the Rising Costs of Human Health Care and Pet Health Care



The U.S. pet health care system has followed a similar trajectory over the last two decades. In a recent NBER paper, they've documented four similarities between our furry friends health-care and ours. This should matter to anyone concerned about the rising costs of health-care. http://bit.ly/2yhrw18 (via Harvard Business Review)

Consider a plant-based diet to help reverse disease today! 





attachment

Saturday, December 9, 2017

Anthony was born with Craniosynostosis


Anthony was born with #craniosynostosis, a common #craniofacial disorder. His skull was fused together, preventing growth. But doctors noticed something amazing. http://bit.ly/2yRElms



attachment

Craniofacial Doctor Andrew Wexler Retirement Gathering


The farewell gathering for Dr. Andrew Wexler was an amazing turnout. They even pulled my patient chart and had it out on the table. It was funny but so meaningful! ðŸ’–


Dr. Wexler has treated children with craniofacial disorders for over 35 years. He is famous for his silly bowties and genuinely caring for his patients. Those born with these conditions often undergo surgery as young as two years old. Surgery is a daunting and complex process, but he’s always ensured to bring humor just before going under the knife. He has changed many lives, including mine.

 

Not only has Dr. Wexler helped bring immense inner joy to many, but he’s given us the realization that surgeries are only surface level. Plastic surgery does not bring harmony to the heart or fix what's missing inside. He’s always advocated that fact. 


Many patients didn't show because of the wildfires in Los Angeles, but several of his colleagues attended, I lost count! I'm so thankful for Dr. Francis helping me to arrange the occasion. 

I met some incredible people on The Kaiser West LA #craniofacial team. These are amazing people who truly care to make a difference in our lives. Without their delicate care all these years, I wouldn't be here today. I'm forever grateful. 

Dr. Wexler thank you for making such a positive impact on my life! You will be deeply missed by all!



upload.jpg

Wednesday, December 6, 2017

Dr. Francis Smith, Treacher Collins Syndrome


Francis was born with Treacher Collins Syndrome and works as a scientist. He is also an accomplished classical pianist and violinist. We've spent quality time together at every retreat. He's like the brother I never had.

Francis you are a remarkable man. I'm so grateful to have you in my life! We can't wait until our next adventure at the CCA retreat! The girls and I are already talking and planning!

http://cbsloc.al/2Au8Xf0



attachment

Monday, December 4, 2017

Cassidy and Sophie, Treacher Collins Syndrome


Cassidy and Sophie treat each other more like sisters, despite having only met recently. The two girls were born with Treacher Collins Syndrome, a rare genetic disorder that results in facial abnormalities of varying degrees. http://bit.ly/2A0Rhsa



attachment

Saturday, December 2, 2017

Chocolate Chunk Maple Glazed Pumpkin Loaf Recipe


This Chocolate Chunk Maple Glazed Pumpkin Loaf recipe is delicious and easy to make! Browse more healthy #recipes on our FREE Assuaged iOS App!

Enjoy conveniently linking within the app and discover dual-certified USDA Organic and Non-GMO Project Verified products to buy in BULK and SINGLE for CHEAP!

Find plant-based recipes for #health conditions, body essentials products, DIY #beauty, mapquest to stores and MORE! https://itunes.apple.com/us/app/assuaged/id1300506711?mt=8

Adapt to an #organic #vegan blue-zone lifestyle for #wellness and #vitality today!



upload.jpg


upload.jpg


upload.jpg


upload.jpg

Friday, December 1, 2017

Zoey Tidwell, Battles Complications from Rare Craniofacial Condition


Adorable Zoey Tidwell from Saucier in Mississippi, USA, battles many complications caused by severely undergrown facial bones, including difficulties breathing and feeding. Zoey has an ultra-rare #craniofacial syndrome. She starts her marathon surgery list to fix her face and help her to lead a normal life. http://bit.ly/2khXs4k



pay-one-in-a-billion-baby-surgery.jpg